WVU Mountain State Cystic Fibrosis Center

WVU Mountain State Cystic Fibrosis Center WVU Mountain State Cystic Fibrosis Center

As a chartered National Cystic Fibrosis Foundation member, WVU’s Mountain State Cystic Fibrosis Center has more than a decade of experience caring for children and with this debilitating disease. Our leading-edge research combined with our team approach results in the highest lung function for children with CF in the state. Because CF often affects many of the body’s organs and functions, and related complications can vary by patient age, our CF experts, other medical specialists, geneticists, counselors, and families work together as a team. This multi-specialty team approach ensures that the most comprehensive care is provided to each patient. Recognized as a CF site for excellence and leadership in CF care, the Mountain State Cystic Fibrosis Center is one of only 18 Cystic Fibrosis Foundation Therapeutic Development Network Centers in the U.S., reflecting our expertise and leadership in CF research.

Thank you to all of our teams that came out today!
05/04/2019

Thank you to all of our teams that came out today!

WVU Mountain State Cystic Fibrosis Center
05/04/2019

WVU Mountain State Cystic Fibrosis Center

We hope everyone enjoyed their time at the Great Strides Walk & Education Day! #AddingTomorrows #UntilItsDone
05/04/2019

We hope everyone enjoyed their time at the Great Strides Walk & Education Day! #AddingTomorrows #UntilItsDone

05/04/2019
Our vendors are all set up and ready for the walk!
05/04/2019

Our vendors are all set up and ready for the walk!

Registration begins at 11:00 am!
05/04/2019

Registration begins at 11:00 am!

Be sure to register at the check in desk for Education Day on Saturday! You will be entered to win one of many awesome d...
05/03/2019

Be sure to register at the check in desk for Education Day on Saturday! You will be entered to win one of many awesome door prizes! Special Thanks to Mountaineer Home Medical in Morgantown for donating some really great items!

Door Prizes:
•WVU coffee tumbler
•Great Strides half-zip
•Philips Innospire Go (portable nebulizer)
•2 Philips Home Nebulizer systems with 1 neb kit each (supplied by Mountaineer Home Medical)

Heading back from Austin, TX  armed lots of great information!
04/30/2019

Heading back from Austin, TX armed lots of great information!

The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months!
04/30/2019
FDA Approves Kalydeco for Infants With CF

The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months!

The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months.

Enjoying learning about upcoming CF research at the Therapeutics Development Network Spring Meeting.
04/29/2019

Enjoying learning about upcoming CF research at the Therapeutics Development Network Spring Meeting.

Today we celebrate Center Director Dr. Moffett’s “29th” Birthday! 🎉🎉
04/26/2019

Today we celebrate Center Director Dr. Moffett’s “29th” Birthday! 🎉🎉

Please join us next Saturday for our Great Strides Walk and Education Day. Even if you are not walking, we would love to...
04/26/2019

Please join us next Saturday for our Great Strides Walk and Education Day. Even if you are not walking, we would love to have you join us for education. We have a a wonderful speaker from the Anton Yelchin Cystic Fibrosis Clinic at Keck Medical Center of USC. Debbie Benitez will be speaking to us about navigating the medical insurance system.

We hope to see everyone at our Great Strides and Education day on May 4th! Registration starts at 11!

We hope to see everyone at our Great Strides and Education day on May 4th! Registration starts at 11!
04/12/2019

We hope to see everyone at our Great Strides and Education day on May 4th! Registration starts at 11!

April is national donate life month. We were able to attend the flag rising ceremony and hear from some amazing people.
04/12/2019

April is national donate life month. We were able to attend the flag rising ceremony and hear from some amazing people.

Another good option for sanitizing nebulizer equipment!#Amazon
03/30/2019
Wabi Baby Electric Steam Sterilizer and Dryer

Another good option for sanitizing nebulizer equipment!
#Amazon

New Plus Wari Baby Sterilizer is the top of the line sterilizer you can find. A 4-in-1 sterilizer that combines steam sterilization, hot air drying, storage function, and one button descaling to give you and your baby the absolute best. Made for contemporary, on-the-go parents, our sterilizer is ...

If anyone watches the Bachelor, you may be familiar with Colton Underwood. He has a nephew who has cystic fibrosis, and ...
03/07/2019
Project Application Form — Colton Underwood Legacy Foundation

If anyone watches the Bachelor, you may be familiar with Colton Underwood. He has a nephew who has cystic fibrosis, and has set up a foundation in honor of him. His mission is to award 50 AffloVests in 50 states. In each state, one CF patient will receive an AffloVest. We would like to encourage any and all of our patients to use the link below to apply for an AffloVest, as West Virginia has not had a patient awarded one yet! Please call our office if you have any questions.

http://www.coltonslegacy.org/apply-for-the-legacy-project

The CFF has released this information on infection control in relation to the upcoming movie, Five Feet Apart.
03/06/2019
Five Feet Apart

The CFF has released this information on infection control in relation to the upcoming movie, Five Feet Apart.

"Five Feet Apart," a movie about two teens with cystic fibrosis, is slated for release in the U.S. in March 2019. The CF Foundation was not involved in the production of the film. However, we are hopeful that the movie will be a positive opportunity to increase awareness of CF and the challenges peo...

Our CF Team had a wonderful evening celebrating and fund raising for WVU Medicine Children’s Hospital.
02/10/2019

Our CF Team had a wonderful evening celebrating and fund raising for WVU Medicine Children’s Hospital.

The Family I Never Wanted
01/25/2019
The Family I Never Wanted

The Family I Never Wanted

When my daughter was diagnosed with cystic fibrosis, our nurse looked at me and said, “Welcome to the family!” Although I wanted to punch her otoscope lights out at the time, I think I’m finally starting to understand what she meant 13 years later.

My Feeding Tube is at its Best When I’m Feeling My Worst - Gunnar Esiason Blog
01/23/2019
My Feeding Tube is at its Best When I’m Feeling My Worst - Gunnar Esiason Blog

My Feeding Tube is at its Best When I’m Feeling My Worst - Gunnar Esiason Blog

Day four with my cold and I can see the faintest light at the end of the tunnel. I pull out all the tricks when I’m sick, but none more important than hammering away with my feeding tube. I’m the kind of person who hates eating when I get sick. I just have absolutely no…

01/21/2019

As the Federal shutdown continues, with many families potentially facing a second pay day and no check - particularly for those mandated to continue to work, realizing expenses with no pay - MVW would like to offer free vitamins. Any Center contacting us, where a patient or family is affected, we will provide free vitamins - no charge for vitamins; no charge for shipping.

Please contact our dietitican Jennifer Lowry 304-581-1956 to furthur assist you.

Cystic Fibrosis Life Hacks - Gunnar Esiason Blog
01/09/2019
Cystic Fibrosis Life Hacks - Gunnar Esiason Blog

Cystic Fibrosis Life Hacks - Gunnar Esiason Blog

It’s been awhile since I’ve listed a few “life hacks” I use to make my daily routine with CF a bit easier. I originally wrote about this a long, long time ago… so we’re in need of an update! The solo cup Plastic cups are how I stay organized while I’m doing treatments. I use…

Our Center is active in clinical trials. They are essential in the journey to make CF stand for Cure Found.
01/02/2019
Why Participate in a Clinical Trial?

Our Center is active in clinical trials. They are essential in the journey to make CF stand for Cure Found.

Clinical trials (or studies) are critical to developing new treatments for cystic fibrosis. When you are considering whether you or your child should participate in a clinical trial, you must consider the risks and the benefits.

Wishing you a Happy New Year from all of us at the Mountain State Cystic Fibrosis Center!
01/01/2019

Wishing you a Happy New Year from all of us at the Mountain State Cystic Fibrosis Center!

Wishing you & yours a happy holiday season!
12/26/2018

Wishing you & yours a happy holiday season!

12/19/2018
April's battle with cystic fibrosis

April was kind enough to share her CF journey with us. Watch the video below to see April's amazing journey.

*credit to Joe Catullo, for making this video

April Thompson thought her running days were over when she was diagnosed with cystic fibrosis in 2005. But, rather than dwell on it, she lives her life to th...

Hill-Rom
12/12/2018

Hill-Rom

You asked, we listened! Many patients have asked, “How does Monarch® System compare to The Vest® System for airway clearance therapy?” Well, the results are in. Take a look at this study showing how Monarch® System was comparable to The Vest® System for sputum production. http://mymonarch.com/practitioners

Cystic Fibrosis Foundation - Western Pennsylvania Chapter
12/12/2018

Cystic Fibrosis Foundation - Western Pennsylvania Chapter

Thank you to everyone who supports the CFF Partners in Progress. We met our $10,000 match goal! Thank you to everyone who participated to made this goal a reality. We STILL need your help to reach our goal of $80,000. Please make a gift TODAY! We will not stop until "CF" stands for Cure Found".
fightcf.cff.org/westernpa-anf

12/06/2018
Fight the flu

If you haven’t already, protect yourself and the ones you love this season-get your flu shot. We are proud of Dr.Costello for educating the public on the importance of getting vaccinated.

Dr. Lisa Costello, a WVU Medicine pediatrician and assistant professor at the School of Medicine, is encouraging everyone to get a flu shot this season. Nati...

We are working hard to improve our process for transition from pediatric to adult care. Here is one patient’s perspect...
12/04/2018
Facing My Fears About Transitioning to an Adult Care Team

We are working hard to improve our process for transition from pediatric to adult care. Here is one patient’s perspective.

I dreaded transitioning from my pediatric care center to my adult care center. I was stubborn and knew that I did not want to go. I thought I knew best, that is, until one phone call changed my entire perspective.

A great way to recognize someone important in your life! Nominate a special caregiver (parent, spouse, significant other...
11/29/2018
Recognize a CF caregiver

A great way to recognize someone important in your life! Nominate a special caregiver (parent, spouse, significant other, sibling, grandparent, etc) today! 💜💜

Learn how to celebrate this special part of the CF community.

#WVUdayofgiving
11/15/2018

#WVUdayofgiving

Hill-Rom
11/14/2018

Hill-Rom

Sharing some solid life perspective today from @good_ole_cworth. "CF doesn't define me, but it's the reason I am who I am. It's the reason I look at life the way I do, it's why I feel everything a little deeper, love a little harder and often catch myself enjoying the little moments in life that most overlook." 🙌💙🦋 #cfwarrior #mymonarch #cysticfibrosis #cf #cysticfibrosisawareness #65roses #sixtyfiveroses #airwayclearance #hillrom

Excited to participate in the CF Advanced Practice Provider Advisory Board.
11/09/2018

Excited to participate in the CF Advanced Practice Provider Advisory Board.

Absolutely fantastic session at NACFC. Building and Enhancing Care Partnerships: Skills and Strategies for Health Care P...
10/19/2018

Absolutely fantastic session at NACFC. Building and Enhancing Care Partnerships: Skills and Strategies for Health Care Professionals. Wonderful discussion with a provider and patient panel.

Gunnar Esiason
10/19/2018
Gunnar Esiason

Gunnar Esiason

Day one of the North American Cystic Fibrosis Conference is in the books! Here's my recap... things I LOVED, things that made me scratch my head and more from Day 1 of the conference, from infections, to exercise, alternative remedies and more! Remember the Salty Cysters and I will be recording LIVE podcasts throughout the rest of the conference over on the Boomer Esiason Foundation's page! #cysticfibrosis #NACFC #NACFC2018

http://www.gunnaresiason.com/north-american-cystic-fibrosis-conference-day-1-recap-podcast/

Good morning from Denver! We are beginning Day 2 of conference and we’re so excited to be learning all the new advance...
10/19/2018

Good morning from Denver! We are beginning Day 2 of conference and we’re so excited to be learning all the new advancements in CF care!

We are so proud of Erin for presenting at the North American Cystic Fibrosis conference! Way to represent mountain state...
10/18/2018

We are so proud of Erin for presenting at the North American Cystic Fibrosis conference! Way to represent mountain state CF center!!

10/15/2018
WVU Health Sciences

WVU Health Sciences

It's flu season! What does that mean? How can you stay protected?

It is Possible to be 100% Compliant With Your CF Treatments – You’re Wrong If You Think Otherwise - Gunnar Esiason B...
10/12/2018
It is Possible to be 100% Compliant With Your CF Treatments – You’re Wrong If You Think Otherwise - Gunnar Esiason Blog

It is Possible to be 100% Compliant With Your CF Treatments – You’re Wrong If You Think Otherwise - Gunnar Esiason Blog

Is it a pain in the ass to find time do treatments? Is it annoying to spend hours each month on the phone with pharmacies and the insurance company? Have you stuck yourself far too many times with a syringe while trying to reconstitute a medication? Have you ever considered skipping a treatment just...

Address

One Medical Center Drive P.O. Box 9214
Morgantown, WV
26506

Telephone

(304) 293-1201

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