Stanford Girl BAND Study

Stanford Girl BAND Study The Girl BAND study is an NIH-funded research project aimed to increase our understanding of the brain during a critical time of a child's growth.
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Stanford Girl BAND study is an NIH-funded research project at the Center for Interdisciplinary Brain Sciences Research (CIBSR) in Stanford School of Medicine's Department of Psychiatry & Behavioral Sciences aimed to increase our understanding brain development in relation to behavior, cognition, and mood in GIRLS. Information learned from this research can ultimately contribute to an increased understanding of learning, behavior, and emotion facilitating the development of intervention services/therapies.

Operating as usual

Tip Tuesday💡  Here are some self-care habits recommended by the @cdcgov during these trying times. With the stress of a ...
09/01/2020

Tip Tuesday💡

Here are some self-care habits recommended by the @cdcgov during these trying times. With the stress of a pandemic raging all around us and an uncertain future, it is more important than ever to take care of ourselves before we can take care of others.🧡

📣 A huge shoutout to our hardworking summer intern @amara.khann for creating these beautiful infographics!


#selfcarehabits #tipsforparents #tiptuesday #parentsofinstagram

🏫It’s Back to School time and regardless of what the format of school might be, we understand that this is going to be a...
08/31/2020

🏫It’s Back to School time and regardless of what the format of school might be, we understand that this is going to be a different year for everyone. We support your education choices and applaud your effort. We wish everyone a Happy Beginning to your School Year!


#backtoschool2020 #happybacktoschool #virtualschool #childdevelopment

🖍Looking for free, educational activities to help keep your child busy and learning while at home? Download this free co...
08/27/2020
NIMH » Get Excited about the Brain!

🖍Looking for free, educational activities to help keep your child busy and learning while at home? Download this free coloring and activity book from NIMH!

This science education activity book intended for children ages 8-12 years old helps kids learn facts about the brain through games and puzzles about brain science and research. This activity book can be downloaded and printed.

Thank you The National Fragile X Foundation for sharing this critical research -- Females living with Fragile X syndrome...
08/21/2020
Female Power to Fight COVID-19 with Marcia Braden

Thank you The National Fragile X Foundation for sharing this critical research -- Females living with Fragile X syndrome were asked to give advice to other females living with FXS on how to cope with this — or any future — crisis. Listen as Marcia Braden, a licensed psychologist specializing in children and adolescents, and an NFXF Scientific & Clinical Advisory Board member, talks through their advice and provides clarity based on her decades of working with patients with Fragile X syndrome.

With Marcia Braden Dr. Marcia Braden asked females living with Fragile X syndrome to give advice to other females living with FXS on how to cope with this — and future crisis. Listen as Marcia talks through their advice and her own advice, built on decades of working with patients with Fragile

Tip Tuesday 💡 Check out this helpful infographic created by one of our wonderful summer students: Amara Khan 👩‍💻  We kno...
08/18/2020

Tip Tuesday 💡


Check out this helpful infographic created by one of our wonderful summer students: Amara Khan 👩‍💻


We know that virtual learning can be challenging, and it is okay to prioritize maintaining skills rather than advancing them at this unprecedented time.


#tiptuesday #tipsforparents #virtuallearning #distancelearning

This school year is going to be very different, and we hope everyone is staying safe and healthy! Here’s an article on c...
08/13/2020
Back-to-School Anxiety During COVID-19 – Children's Health

This school year is going to be very different, and we hope everyone is staying safe and healthy! Here’s an article on coping with back-to-school anxiety:

Students are facing many changes this school year due to the coronavirus (COVID-19) pandemic. Learn how to manage anxiety during this uncertain time.

Tip Tuesday 💡   Check out this useful Screen Time Chart created by @nihgov 🖥  Our Girl BAND research team is currently s...
08/11/2020

Tip Tuesday 💡


Check out this useful Screen Time Chart created by @nihgov 🖥


Our Girl BAND research team is currently studying the impact of COVID-19 pandemic and technology use on all participating families. We have observed some common concerns and positive aspects. We look forward to sharing the results with you. Stay tuned!


#tiptuesday #screentime #childdevelopment #stanfordgirlband

The Teen Brain: 7 Things to Know       Did you know that adolescence is a critical period for brain development? Here’s ...
08/10/2020

The Teen Brain: 7 Things to Know



Did you know that adolescence is a critical period for brain development? Here’s a resource sheet created by @nimhgov The National Institute of Mental Health 🧠


#braindevelopment #mentalhealthawareness #neuroscience #teenbrain

We are actively recruiting GIRLS ages 6-14 with learning differences, developmental disabilities, and/or behavioral chal...
08/06/2020

We are actively recruiting GIRLS ages 6-14 with learning differences, developmental disabilities, and/or behavioral challenges. Please visit our website to learn more: https://med.stanford.edu/girlband.html

Fragile X Syndrome
07/22/2020

Fragile X Syndrome

The National Fragile X Foundation
07/15/2020

The National Fragile X Foundation

Individuals over 17 with Fragile X syndrome are eligible to apply for #RAREis scholarships for post-secondary education, including vocational-technical, college, or university classes and either part-time or full-time. The $5,000 scholarships are for the Spring 2021 semester and the deadline to apply is August 28. Learn more at https://hubs.ly/H0sxJgz0. Thanks EveryLife Foundation for Rare Diseases

The National Fragile X Foundation
07/14/2020

The National Fragile X Foundation

FACT: While females with FXS tend to have milder symptoms than their male counterparts, they still face challenges that require special care and attention. #FragileX https://hubs.ly/H0stY0P0

How do you explain social distancing to a 2-year-old girl who just wants to hug her grandparents? A book by Stanford Eme...
05/22/2020
Social distancing through the eyes of a toddler - Scope

How do you explain social distancing to a 2-year-old girl who just wants to hug her grandparents? A book by Stanford Emergency Medicine​ doctor Ben Lindquist, helps kids understand social distancing and why they may not be able to hug their grandparents right now.

Stanford physician Benjamin Lindquist wrote a children's book to help explain social distancing to his 2-year-old daughter Kiley.

05/20/2020
Stanford University

Stanford University

Three tips for happy homeschooling:

• give your kids voice and choice
• save screen time for social connections
• put your relationship first

For more teaching and learning resources from the Stanford Graduate School of Education, visit: https://ed.stanford.edu/covid19

Social Story about COVID-19 (for younger children under 7 years old):
04/28/2020
COVIBOOK | Mindheart

Social Story about COVID-19 (for younger children under 7 years old):

Dear families and educator all over the world,  I have created this short book to support and reassure our children, under the age of 7, regarding the COVID-19. This book is an invitation for families to discuss the full range of emotions arising from the current situation. It is important to poin...

Our Spring Newsletter is out! It includes updates on our research in the midst of COVID-19 as well as some tips and stra...
04/28/2020

Our Spring Newsletter is out! It includes updates on our research in the midst of COVID-19 as well as some tips and strategies for your family. You can download and read the full version of the newsletter on our website: https://med.stanford.edu/girlband.html

👋🏼Happy Monday! The Stanford Girl BAND team is moving forward full steam ahead with our clinical research study remotely...
03/30/2020

👋🏼Happy Monday! The Stanford Girl BAND team is moving forward full steam ahead with our clinical research study remotely. You can now participate in our study via online video! Please visit our website for more information. 🏠#stayhome #staysafe #stanfordgirlbandstudy

💻The Stanford Girl BAND Study is moving forward full steam ahead with our online video remote visits, advancing our clin...
03/28/2020
Girl Band

💻The Stanford Girl BAND Study is moving forward full steam ahead with our online video remote visits, advancing our clinical understanding of behavioral and emotional challenges in girls.

👩‍🔬We now have the option of administering assessments and interviews with you and your child via video conference.

🔍Please help us continue with our research for girls during these trying times! To learn more, please visit our website!

The National Fragile X Foundation has provided the most timely and meaningful educational resources. Stay healthy! 😊
03/26/2020
COVID-19 – My child is home from school or work or a day program! What do I do?

The National Fragile X Foundation has provided the most timely and meaningful educational resources. Stay healthy! 😊

First – take a deep breath and take the time to gather your thoughts on what you need to do. You have to appear calm, even if your mind is running a thousand miles an hour. What am I going to do with the children all day? How do I get supplies in the

We know that it's not easy having your children home all day due to the coronavirus pandemic, here are some helpful tips...
03/26/2020
Tips For Homeschooling During Coronavirus

We know that it's not easy having your children home all day due to the coronavirus pandemic, here are some helpful tips from NPR!

Tens of millions of parents are homeschooling their kids during the coronavirus. Here's a realistic guide to keeping kids engaged and everyone sane. Hint: this is a good time for passion projects and sleeping in a bit.

03/23/2020

During this period, the Center of Interdisciplinary Brain Sciences Research at Stanford will be closed temporarily to follow the "shelter in place" order announced by the county. Please postpone mailing any urgent documents and/or cortisol samples at this time as all staff are currently working remotely from home.

03/18/2020
03/05/2020
Importance of Discussing Sexuality as a means of Abuse Prevention.

In this video, you will hear Parents Helping Parents Staff interviewing Dr. Nora Baladerian, a clinical psychologist specializing in Trauma And Abuse. The importance of openly discussing sexuality with individuals with developmental and intellectual disabilities is key to abuse prevention.

This is an interview by PHP with Dr. Nora Baladerian, a clinical psychologist specializing in Trauma And Abuse. Here the team talks about the importance of D...

We look forward to attending the International Fragile X Conference in Orlando!
02/03/2020
International Fragile X Conference

We look forward to attending the International Fragile X Conference in Orlando!

NFXF International Fragile X Conference The NFXF International Fragile X Conference is the largest of its kind in the world. This biennial event brings professionals, caregivers, self-advocates, and family members together in one place—a truly unique experience for a community all-too-familiar wit...

The National Fragile X Foundation
10/24/2019

The National Fragile X Foundation

Halloween is a day that many children look forward to all year long, but it can offer challenges for children with Fragile X syndrome. While it is typically “all about” the candy for many children, there are actually a variety of activities during this season that you can choose from, so it need not be all about one night.

Jayne Dixon Weber covers everything in her article - there is something for everyone. #FragileX #SensoryChallenges
https://hubs.ly/H0lrvyn0

Disability Rights California
10/21/2019
Disability Rights California

Disability Rights California

October is National Bullying Prevention Month!

Parents, Please Talk to your Children About Classmates With Disabilities

"Tell them we need many different types of people for our world to work. No two people are exactly the same, and the world would be pretty boring if they were."-Katie Campbell

Regardless, we hope everyone enjoys going back to school/their usual routine! 😁
09/10/2019

Regardless, we hope everyone enjoys going back to school/their usual routine! 😁

The Girl BAND team will be at the Annual Family Picnic on 9/29! We look forward to seeing everyone there!
09/10/2019
SF Bay Area Support Group Annual Family Picnic

The Girl BAND team will be at the Annual Family Picnic on 9/29! We look forward to seeing everyone there!

This event is inclusive of all X and Y chromosome variations and age groups. Family members, partners, related professionals and friends are welcome. Look for the yellow balloons. Bring any food or drink to share- whatever feels easy or fun. Bagels and

These young ladies worked very hard and had so much fun during their visit at Stanford! The Girl BAND team is extremely ...
08/23/2019

These young ladies worked very hard and had so much fun during their visit at Stanford! The Girl BAND team is extremely proud of you and we are grateful for your contribution to science! Thank you and we hope you enjoy your cool brain pictures! 🧠🤗 #Stanfordgirlbandstudy #firstmri

📣We only have a few spots opening before summer ends for GIRLS ages 6-14 with developmental disabilities or learning/beh...
07/30/2019

📣We only have a few spots opening before summer ends for GIRLS ages 6-14 with developmental disabilities or learning/behavioral challenges!
👩‍🔬Participating families will receive comprehensive cognitive/behavioral evaluations for FREE with written report of evaluation results.
✅Help us learn more about brain and behavioral growth in girls during a critical time in their development!

Address

401 Quarry Road
Stanford, CA
94305

Opening Hours

Monday 08:30 - 17:00
Tuesday 08:30 - 17:00
Wednesday 08:30 - 17:00
Thursday 08:30 - 17:00
Friday 08:30 - 17:00

Telephone

(650) 724-2951

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Leah, age 6 full mutation Fragile X from Ohio, had an amazing experience with her first visit to Stanford for the Girlband study. The team made her so comfortable and excited to participate. We look forward to continuing this important research to support all Fragile X kids and families!