PANS Program at Stanford University

PANS Program at Stanford University Please visit http://med.stanford.edu/pans for more information about the PANS Program at Stanford University.
Children who have a suspected or diagnosed condition of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS), Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS), or Sydenham chorea (with psychiatric symptoms) may be accepted into our program. (Please inquire by email as our clinic is very limited). We know that these conditions present a sudden, seemingly inexplicable change in children, and understand that getting accurate diagnosis, proper treatment and family support can make a profound difference for both the child’s health and the entire family’s well-being. Our goal is to provide outstanding care based on groundbreaking research, and to tailor care to your child’s unique combination of symptoms and your family’s personal needs. Stanford was the first academic institution to start a mutlidisciplinary PANS service. We hosted the first national PANS conference in the spring of 2013 where we worked to create clear diagnostic guidelines.

What are PANS and PANDAS? Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) is a clinical diagnosis given to children who have a dramatic – sometimes overnight – onset of neuropsychiatric symptoms including obsessions/compulsions or food restriction. They are often diagnosed with obsessive-compulsive disorder (OCD) or an eating disorder, but the sudden onset of symptoms separates PANS from these other disorders. In addition, they may have symptoms of depression, irritability, anxiety, and have difficulty with schoolwork. The cause of PANS is unknown in most cases but is thought to be triggered by infections, metabolic disturbances, and other inflammatory reactions. Like PANS, children with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS) have an acute onset – within 2 to 3 days – of neuropsychiatric symptoms, specifically OCD or tics (involuntary, purposeless movements). However, PANDAS patients test positive for a recent streptococcal infection, such as strep throat, peri-anal strep or scarlet fever. Like PANS patients, they also may suffer from uncontrollable emotions, irritability, anxiety and loss of academic ability and handwriting skills. Although PANDAS was identified as a medical syndrome more than a decade before PANS, it has been classified as a subset of PANS. To date, PANDAS is the only known subset of PANS, but we may discover more causes in the future.

Mission: Our Clinical Care Mission: To develop a diverse team of clinicians that can provide expertise for the many facets of this condition including experts in: autoimmunity (rheumatologists), immunodeficiency (immunologists), neurotransmitters (psychiatrists and neurologists), infectious diseases, nutrition, food intolerance, and psychology. Our goal is to rapidly integrate research discoveries to improve treatment strategies. The cornerstones of our treatment are based on understanding inflammatory contributions (infectious, autoimmune, and autoinflammatory), paliating the clinical condition as the brain heals, and integrating the most effective and expedient pathways to rehabilitate from these presumed inflammatory insults. Our Research Mission: 1. To identify molecular pathways and environmental triggers (including changes to the microbiome) in patients with PANS in order to develop therapeutics which could treat and prevent neuropsychiatric deteriorations. 2. To discover better diagnostic methods and biomarkers for recognizing PANS early, potentially before the first full episode. 3. To identify resilience and vulnerability factors and traits that are associated with PANS prognosis in order to develop interventions which enhance resilience pathways and down regulate vulnerability pathways. To achieve these goals, we are particularly interested in investigating the role of infection in triggering/worsening the curse of PANS, how immunodeficiency and autoimmunity may be involved, and the role of vascular abnormalities and inflammation in the basal ganglia and other relevant brain areas.

08/25/2016

The Stanford PANS Clinic is recruiting healthy pediatric volunteers.

Eligibility criteria to qualify:
 Between 4 – 18 years old
 Fluent in English
 No current or past psychiatric illness
 Willing to complete questionnaires, one pediatric-friendly motor function exam, and at least one blood draw on the Stanford Medical campus: Freidenrich Center for Translational Research
800 Welch Rd, Palo Alto, CA

Participants will receive:
 Up to $100 ($50 per blood draw)
 Community service hours for time spent filling out questionnaires, transportation and visit time
 Opportunity to help the Stanford PANS Clinic learn more about why some children get PANS and others don’t


For more information, contact: [email protected]

For general rights for research participants, contact 1-866-680-2906

How are you celebrating PANS Awareness? We will be at CuriOdyssey enjoying a beautiful day on the bay!
10/10/2015

How are you celebrating PANS Awareness? We will be at CuriOdyssey enjoying a beautiful day on the bay!

PANS Awareness is this week and we will be celebrating on Saturday, October 10th at CuriOdyssey & Coyote Point Recreatio...
10/05/2015
PANS Family Day & Awareness Event

PANS Awareness is this week and we will be celebrating on Saturday, October 10th at CuriOdyssey & Coyote Point Recreation Area. Have you RSVP'd?

PANS Family Day & Awareness Event at CuriOdyssey Science & Wildlife Center at Coyote Point Recreation Area in San Mateo, CA benefiting Lucile Packard Foundation for Children's Health

Join the Stanford PANS Program in celebrating PANS Awareness on October 10th at CuriOdyssey! We will be exploring the wi...
09/12/2015
PANS Family Day & Awareness Event

Join the Stanford PANS Program in celebrating PANS Awareness on October 10th at CuriOdyssey! We will be exploring the wildlife center throughout the day and enjoy a group lunch in the park. Please RSVP by October 5th. We will see you there!

PANS Family Day & Awareness Event at CuriOdyssey Science & Wildlife Center at Coyote Point Recreation Area in San Mateo, CA benefiting Lucile Packard Foundation for Children's Health

Blog Post by the WSJ - 5 Things to Know About PANS
07/16/2015
5 Things to Know About PANS

Blog Post by the WSJ - 5 Things to Know About PANS

The idea that there might be a link between infections and certain psychiatric disorders has gained credence among scientists over the past few years. Resources have followed, including the creation in 2012 of a Stanford University clinic dedicated to studying and treating the condition, known most…

Check out the article in the Wall Street Journal highlighting the Stanford PANS Program and the Pohlman family. A huge t...
07/13/2015
Can an Infection Trigger OCD?

Check out the article in the Wall Street Journal highlighting the Stanford PANS Program and the Pohlman family. A huge thank you to the P.A.N.D.A.S. Network for your ongoing support of our clinic, patients, and families! #PANS #PANDAS #NIMH #OCD #STANFORD #LPCH #WSJ

Doctors and psychiatrists have long debated whether there is a link between infections and certain psychiatric disorders, including OCD. Over the past few years, the notion has been earning more recognition in the scientific community—and resources, including clinics to treat patients and run trials…

PANS Program at Stanford University
06/04/2015

PANS Program at Stanford University

PANS Program at Stanford University's cover photo
06/03/2015

PANS Program at Stanford University's cover photo

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