My journey with Double Lung Transplant/Alpha-1 Antitrypsin Deficiency

My journey with Double Lung Transplant/Alpha-1 Antitrypsin Deficiency This page is to journal my journey with Alpha-1, and double lung transplant, on 8-27-19, at Ohio State University Wexner.

The joys, pains, fears....everything I feel, think and experience...

11/22/2025

I have to say, I am feeling AMAZING! I’m standing on faith, that all is going to be okay!!
I do hate waiting, though, but that’s all we can do.

I found this cute little flower, just laying in the floor in Kroger… I consider that a good sign, so picked it up. Then,...
11/19/2025

I found this cute little flower, just laying in the floor in Kroger… I consider that a good sign, so picked it up. Then, just now, received a $10 tip for delivering food less than 2 miles.

I am standing on this!
11/19/2025

I am standing on this!

11/17/2025

Here it is. I wasn’t going to post anything, until I knew for sure… However, I’ve always been an open book, and Prayer is everything. So, here goes!
So many things have been going on in my life. My amazing sister, Cheryl Chandler-Kilgore, was diagnosed with acute myeloid leukemia, in late May. This led to her needing a bone marrow transplant, which required one month in the hospital and two months in a hotel. So, my niece, Lynnsey Nicole, and I sat out to raise funds for this, through various fundraising events.… (extremely time-consuming, work, but we were up for the task, and did very well) Fast-forward… Sis (Cheryl) had her bone marrow transplant in October, but things didn’t go as quickly as we (family) had hoped. It took her over 30 days, for engraftment after the transplant. Now? She is in the hotel, and things are going great! While all this is happening, my brother Ricky Chandlers wife, Pam, is in end stage dementia. Rick has been tirelessly caring for her, while he, himself, needs a kidney transplant. Everybody is holding on, praying and putting all our faith in God.
Let’s add to this story, shall we? November 6, on my birthday, I went to my six month appointment with my Transplant team, at Ohio State Wexner. My PFT… Pulmonary function test… Showed a drop, of 10 to 14%… 20%, indicates chronic lung rejection. The CT scan on my lungs, showed complications as well. Also, a genetic blood test was done, which would show issues on my donor lungs, several times, over the last several months. These results, also showed signs of rejection. (however, the numbers seem to be riding a roller coaster, and going up and down )
This being said, my team is unsure, if this is chronic rejection, or something else, like pneumonia, bronchitis, etc. This could take several months, through other PFT’s, blood work, etc. . However, I am feeling great. All of my other tests come back amazing, and I find myself confused, because six months ago, everything was amazing with all my tests. I also had a lung biopsy, several months ago, which showed no rejection. Call me confused? Wrap me up in a whirlwind of crazy, and that’s what we have lol
Do i have fairh? Absolutely! God has, not only found amazing lungs for me, but he has brought me over six years passed, when I was supposed to be gone! ( Just do a Google search on the odds of this!)
How do I feel? I feel amazing! I feel, as if, something is wrong with the tests, because nothing could possibly be wrong with me! I feel TOO good! (I think im being punked!)
What the actual heck???
Now? I wait. (I am NOT a patient person!)
What happens now?? I prepare for the worst, while having faith in the best possible outcome. You’ll be following me on a journey, of healthy, eating, exercise, and positivity, along with words of faith, from the ONLY Word of God…the bible god has brought me through so much in my life, and I know He WILL Bring me through this! No matter the outcome, Gods will, WILL be done. In, typically, Kandi fashion … we will have fun along this new (yet, somewhat , old, journey) Are you ready? I am!!

Big shout out to my newest top fans! 💎Ann Hinze DissingerDrop a comment to welcome them to our community,
08/27/2025

Big shout out to my newest top fans! 💎

Ann Hinze Dissinger

Drop a comment to welcome them to our community,

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