Partnerships in Dementia Care Alliance

03/27/2026

Your voice can help shape the rights of people living with dementia, around the world. A global consultation is now open to inform upcoming United Nations discussions on a Convention on the Rights of Older Persons. This is a critical opportunity to ensure the experiences and priorities of people living with dementia—and those who support them—are reflected in what comes next.

Takes 15–20 minutes
Deadline: April 15, 2026

Take the survey: https://s.surveyplanet.com/510g29xj
Learn more:https://www.ageknowble.com/pdf/humanrightsprinciples-olderpersons-consultation-2026.pdf

Together, we can help advance dignity, inclusion and human rights for all.

09/12/2025

Reframing Dementia: Challenging Stigma Through Film & Art
September 21, 2025 | 2pm-5pm
Betty Oliphant Theatre, 404 Jarvis St., Toronto
Admission is $10 (+fees)
Register for the event at https://reframingdementia.eventbrite.ca/

Includes a double-short film screening, art exhibit and catered reception. Hosted by The KITE Research Institute – University Health Network, in partnership with Canada’s National Ballet School and Mid-Career Productions (Barrocks Inc.). After the film screening, guests are invited to join a reception at Canada’s National Ballet School (400 Jarvis St., Toronto) for refreshments and an exhibition with artwork created and inspired by people living with dementia. This event is part of the Reimagining Dementia: A Creative Coalition for Justice 's “Taking It to the Streets” international grassroots campaign. Running from September 21-October 21, 2025, the campaign aims to shift the narrative about dementia from loss and decline, to hope and possibilities. The Coalition is an international group that includes people living with dementia, carers/care partners, family , community members and allies who share a vision of care that promotes inclusion, relationships, creativity, joy and the possibility of growth for everyone. Founded in 2020, the Coalition has over 1,000+ members in 38 countries.

08/16/2025

Help us better understand the MAID journey Dying With Dignity Canada (DWDC) is conducting a national research study to explore…

12/23/2024

Survey: Advance requests and medical assistance in dying. Closes on February 14, 2025. A national consultation on advance requests and medical assistance in dying (MAID) will:
discuss advance requests, using international and domestic research, studies and examples; hear your views on advance requests https://www.canada.ca/en/health-canada/programs/consultation-advance-requests-medical-assistance-dying.html

10/20/2024

We would like to congratulate one of our team members on our End of Life Project, Linda Grossman, who participated in the creation of a new short video. The video is the pilot episode on the Stories for Caregivers YouTube channel. It will be available to view for one month while the team involved gathers community feedback. It has a very important message and is well worth the five minutes it takes to watch. Please feel free to share with people you feel might be interested in the video.

Over 700,000 Canadians live with dementia. But despite how common it is, we still don’t talk about it openly. The word ‘dementia’ is scary, and the condition...

10/20/2024

We would like to congratulate one of our team members on our End of Life Project, Linda Grossman, who participated in the creation of a new short video.

The video is the pilot episode on the Stories for Caregivers YouTube channel. It will be available to view for one month while the team involved gathers community feedback. It has a very important message and is well worth the five minutes it takes to watch. Stories for Caregivers

Please feel free to share with people you feel might be interested in the video.

Over 700,000 Canadians live with dementia. But despite how common it is, we still don’t talk about it openly. The word ‘dementia’ is scary, and the condition...

07/14/2024

06/26/2024

Are you a person living with, or caring for someone with, Alzheimer’s disease or mild cognitive impairment due to Alzheimer’s disease? If so, we want to hear from you! Health Canada is currently reviewing Leqembi (lecanemab) and donanemab, two medications to treat early-stage Alzheimer's disease and mild cognitive impairment due to Alzheimer’s disease. Alzheimer Society of Canada is conducting a survey that will help inform how these medications could be included in publicly funded drug plans, if approved by Health Canada. We encourage you to take a few moments to ensure that the voices of people with lived experience are represented and considered during this review process.

Link for a person living with Alzheimer’s or mild cognitive impairment: https://www.research.net/r/Iamapersonwithalzheimers

Link for a caregiver to someone living with Alzheimer’s or mild cognitive impairment: https://www.research.net/r/Iamacaregiver

05/21/2024

There are just 14 days left until the 'Attitudes to Dementia' World Alzheimer Report Survey 2024 closes. This survey provides a global opportunity to increase awareness of dementia stigma, and shine a light on what people believe about dementia. In these final two weeks, every response we receive can make a world of difference.

Please take just 10 minutes to complete the survey by clicking on the link or scanning the QR code, and share it widely within your community: https://bit.ly/World-Alzheimer-Report-2024-Survey

The survey closes on 31 May 2024.

11/20/2023

Are you living with , a family member, or a and/or professional? Participate in our research conversations on . For more details including contact info see the flyer. Please don’t reply to post, contact Romeo Colobong, [email protected]