The KIND Research Group

16/10/2026

Irene Tuffrey-Wijne and Richard Keagan-bull shared the experience of the Staying Alive & Well group today.

We are reminded how important it is to keep shining a lightning the deaths of people with a learning disability, and how upsetting that there are no clear plans for continued scrutiny at national level

16/10/2026

“Please keep fighting for us, because we don’t have a voice”

Tearful plea from one of the members of the
Staying Alive and Well Group. Ten people with a learning disability and their supporters.

We said an emotional farewell yesterday. For the part 5 years, we met monthly to work on accessible versions of the LeDeR report. Thinking about 1000s of deaths of people with a learning disability every year, with too many avoidable deaths, too young.

It has not been easy. But knowing that the baton is not handed on, and there will be no more close national scrutiny of these deaths, is not easy either.

Thank you to everyone

10/09/2026

Thoughtful blog from Downs Syndrome Research Foundation UK about our study on assisted dying

We highly encourage followers to watch the 8th September 2026 webinar and researcher reflections on the findings of a recent…

08/09/2026

Listen to 4 of our KIND researchers, thinking together about the findings from our study on assisted dying & learning disability. What are YOUR thoughts?

Four researchers at Kingston University London reflect on the resul...

08/09/2026

Here are the findings from our study on assisted dying & learning disability.
So much food for thought. Do watch and share!

An interview study with 21 people with a learning disability:--Wha...

07/09/2026

We are ready for tomorrow's webinar on Assisted Dying & People with a Learning Disability. Join us at 13.00. Register here:

https://tinyurl.com/2vy5bzws

We interviewed 21 people with a learning disability. We will share the results with you all. They are striking and important. Don't miss it!

13/07/2026

In the news:
Our Staying Alive and Well group, and their work on the LeDeR report

The government says the findings are stark, while a campaign group says they should be "headline news".

13/07/2026

2024 LeDeR report: just published
You can find everything here: https://www.kcl.ac.uk/research/leder

Here is the short version of the accessible video made by the Staying Alive and Well Group (there is also a longer version, with numbers)
https://youtu.be/w3victzcpBE?si=tcecnAj8mfp-BUUP

Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

13/07/2026

"Far too many people with a learning disability are still dying too young. WHY IS THIS NOT HEADLINE NEWS?"

Powerful words from the people with learning disabilities who worked with us on LeDeR for the past 5 years. They said in their foreword to the 2024 report, published today:

"We are still shocked that we haven’t moved on that much. Every year, working on the report is difficult. It makes us think about our own lives and about our friends. It’s scary to think what might happen to us... Our lives matter. Please DO something!"

Introduction to the 2024 LeDeR report from the Staying Alive and We...

07/07/2026

Our last Assisted Dying focus group today. We have now spoken with 21 people with learning disabilities (2 focus groups & 13 interviews).

They have given us much food for thought. We’ll be making sense of it all over the next few months.

Listen to our findings at the next KIND webinar on 8th September (13.00-13.45 UK time). Register here:

e2118630-1a86-4c11-a5f8-73c4a4996b48@c9ef029c-18cf-4016-86d3-93cf8e94ff94" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/e2118630-1a86-4c11-a5f8-73c4a4996b48@c9ef029c-18cf-4016-86d3-93cf8e94ff94

Downs Syndrome Research Foundation UK
Mencap