The KIND Research Group

13/07/2026

In the news:
Our Staying Alive and Well group, and their work on the LeDeR report

The government says the findings are stark, while a campaign group says they should be "headline news".

13/07/2026

2024 LeDeR report: just published
You can find everything here: https://www.kcl.ac.uk/research/leder

Here is the short version of the accessible video made by the Staying Alive and Well Group (there is also a longer version, with numbers)
https://youtu.be/w3victzcpBE?si=tcecnAj8mfp-BUUP

Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

13/07/2026

"Far too many people with a learning disability are still dying too young. WHY IS THIS NOT HEADLINE NEWS?"

Powerful words from the people with learning disabilities who worked with us on LeDeR for the past 5 years. They said in their foreword to the 2024 report, published today:

"We are still shocked that we haven’t moved on that much. Every year, working on the report is difficult. It makes us think about our own lives and about our friends. It’s scary to think what might happen to us... Our lives matter. Please DO something!"

Introduction to the 2024 LeDeR report from the Staying Alive and We...

07/07/2026

Our last Assisted Dying focus group today. We have now spoken with 21 people with learning disabilities (2 focus groups & 13 interviews).

They have given us much food for thought. We’ll be making sense of it all over the next few months.

Listen to our findings at the next KIND webinar on 8th September (13.00-13.45 UK time). Register here:

e2118630-1a86-4c11-a5f8-73c4a4996b48@c9ef029c-18cf-4016-86d3-93cf8e94ff94" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/e2118630-1a86-4c11-a5f8-73c4a4996b48@c9ef029c-18cf-4016-86d3-93cf8e94ff94

Downs Syndrome Research Foundation UK
Mencap

06/07/2026

Voice of Islam is a digital and online radio station with podcasts covering topics from an Islamic viewpoint. Streaming 24hrs a day.

04/07/2026

We are still looking to learn from people with learning disabilities and those who care(d) for them, and who live(d) in:

➡️Milton Keynes, Luton, Bedfordshire, Hertfordshire
➡️Leicester, Leicestershire, Rutland
➡️West Yorkshire (Kirklees, Calderdale, Wakefield)
➡️Croydon

If you know of anyone with a learning disability who died, or who may be nearing the end of life, please contact any of us, e.g.

[email protected]

https://lnkd.in/ediGKzwk

Thank you for sharing!

01/07/2026

Lots of interest in our toolkit for people with learning disabilities at today’s Advance Care Planning conference!

Great to hear that many are already using these resources

Find the toolkit here:

https://www.victoriaandstuart.com/

25/06/2026

Too hot to work. Even Pierre (our KIND mascot) is taking a break 😎

19/06/2026

What a joy to welcome Dr Chen Shiling and her colleagues yesterday, all the way from Singapore! They have set up an amazing, pioneering health clinic for people with intellectual disabilities:
https://happeehearts.com/about-us/

They are full of skill and full of heart ❤️
They came to learn about extending their work into end-of-life and palliative care, but we learnt as much from them - such as their careful thinking about how to best set up workable systems with limited resources

(They bought Richard’s book in Singapore, who he was delighted to sign!)