UK MS Register

01/09/2026

The MS Society UK's latest "Ask the Expert" blog looks at what we know so far about MS risk and prevention, and where science is still searching for answers.

Take a look: https://www.mssociety.org.uk/research/latest-research/research-blog/ask-the-expert-ms-risk-and-prevention

Professor Ruth Dobson is a neurologist and member of our UK MS Prevention Taskforce. We asked her some of your questions about MS risk – and what research into MS prevention could achieve.

27/08/2026

Your contribution is making a difference 🙏

Every time you update your information on the UK MS Register, you're helping researchers better understand multiple sclerosis and improve the lives of people affected by it.

The data shared by our participants supports a wide range of research projects, from understanding symptoms and quality of life to helping researchers design new studies and clinical trials.

Researchers also work with our dedicated PPIE group, made up of people living with MS, ensuring that research focuses on the issues that matter most to the MS community.

Thank you to everyone who takes part in the Register. Your experiences, insights, and data are helping to drive MS research forward.

18/08/2026

Exciting news! A letter from the UK MS Register written by CI Dr Rod Middleton has been published in The BMJ, showcasing how data shared by people living with MS can help shape research and understanding of the condition. Read more:

Back in April the British Medical Journal (BMJ) published an article titled: “Have you noticed any changes?” The article, written by Ayad Marhoon, is a patient perspective from someone living with MS who explains that, even when scans and clinical measures appear “stable,” they often experie...

14/08/2026

When researching and creating MS services, we need to involve people affected by MS. We spoke to Dr Alison Thomson and Francine Parker about their work to improve MS services for people from minoritised ethnic backgrounds.

12/08/2026

☀️ Feeling the heat?

Many people with MS find that their symptoms can worsen in hot weather. With the current UK heatwave, some may be noticing changes such as increased fatigue or difficulties with concentration.

Experiences like these are important for researchers to understand. Through the UK MS Register, you can log how MS affects you, including how symptoms change over time and in response to factors like hot weather.

Every experience helps build a clearer picture of life with MS and supports future research. Find out more about taking part: https://ukmsregister.org/AboutUs

10/08/2026

🎉 15 years of the UK MS Register!

As part of our 15th anniversary celebrations we’re delighted to share a video interview with the Register’s Chief Investigator, Dr Rod Middleton.

In the interview, Rod reflects on the journey of the UK MS Register, its impact on MS research, and the importance of the data and contributions from everyone who has helped make the Register such a valuable resource over the past 15 years.

A huge thank you to everyone who has taken part, supported the Register and helped advance our understanding of MS.

🎥 Watch the interview and join us in celebrating 15 years of the UK MS Register.

2025 marks 15 years of the UK MS Register! In this video hear from ...

10/08/2026

📖 Today, we’re celebrating National Book Lovers Day.

We have a free book about MS for you and your family, to encourage the joy of reading.

Tingo the nerve cell explores the science of MS, how people live with it and manage it day-to-day.

The printed copy of the book has room to write your own thoughts about MS. The book also has a page of MS facts.

You can order the 'What is MS to Me?' book for free here: https://mssoc.uk/4fLFZuc

06/08/2026

Every person who joins the UK MS Register helps build a clearer picture of multiple sclerosis. By sharing your experiences, you can support research, improve understanding of and help shape better care for the future.

If you live in the UK, are 18 or over, and have an MS diagnosis, please consider joining the UK MS Register today. Your participation can make a real difference.

A 90 second introduction to the work of the UK MS Register with det...

28/07/2026

Welcome to the team Esther!

Esther joins the UK MS Register as part of the Health Data Research UK (HDR UK) Black Internship Programme🎉

We are so pleased to have Esther on board, and look forward to working together in the coming weeks.

23/07/2026

Women living with MS – the University of Leeds wants to hear from you! 📣

Researchers are exploring how Multiple Sclerosis affects women’s everyday lives, including physical activity, wellbeing, and quality of life 🧡

Take part here: https://forms.cloud.microsoft/e/EcC0RmX7MX

For any questions, please contact [email protected] or [email protected]