MACST

25/01/2022

Embrace rarity! spread the love!

16/07/2021

Take a look at his videos to learn more about children with disabilities!

I feel like I owe every person who follows SBSK a huge “THANK YOU!” You have sent an incredible amount of love our way the last few months as we started filming in-person again. Your kind comments are extended to each person featured in an interview, and these positive remarks are often life changing. It would be impossible to fully capture the impact this community is having in words, but just know that you are so appreciated. Thank you!

Photo Description: Chris sits with Liam, a recent interviewee who is diagnosed with Treacher Collins syndrome. The two smile while sitting on a couch with their arms around one another.

07/07/2021

What do you know about Spinal Muscular Atrophy? Register here :https://shorturl.at/oGX16 before the LAST DAY of registration on the 16th of July and feel free to share it with your friends.

You are invited !

Persatuan WeCareJourney is organizing a webinar about Spinal Muscular Atrophy (SMA) and living with SMA to create awareness.

Spinal Muscular Atrophy is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling and walking. It is the number one genetic cause of death for infants.

Event: Get to know: Spinal Muscular Atrophy
Date: 17th of July, 2021, Saturday
Time: 10.45.A.M - 12.00.P.M

The purpose of this webinar is to raise awareness on SMA to the public / students to understand better about SMA and also the importance of care for a SMA patient. So we would be glad if you could share the information regarding our webinar to your contacts.

To save your seat, please register here: https://shorturl.at/oGX16
before the LAST DAY of registration on the 16th of July and feel free to share it with your friends.

We hope to see you there!

Have a great rest of the day. Thank you.

25/05/2021

https://give.asia/campaign/help-siti-nabila-6760 #/

Siti Nabila was diagnosed with Acute Lymphoblastic Leukemia, a childhood cancer of the bone marrow exposing her to infections, and there are a lot of future health problems that could come with it, with various problems stopping her from receiving treatment such as citizenship and financial difficulties. Let us give her a helping hand!

All funds raised will be paid directly to Kuching General Hospital for her medical bills.

Siti Nabila is only 9 years old and she is suffering from childhood cancer. She has been diagnosed with Acute Lymphoblastic Leukaemia that requires 2 years of active treatment with long term follow up care. She has had a sad start in life, having been given up for adoption by her birth parents who w...

22/05/2021

Join us to know more about Prader-Willi Syndrome and remember to click follow on Persatuan Sindrom Prader-Willi Malaysia!

Sempena PWS Awareness Month, untuk mengetahui lebih tepat tentang Sindrom Prader-willi ini, kami menjemput semua untuk mengikuti program di BERNAMA TV secara FB Live pada pukul 4.30 petang hari Jumaat 21hb. Mei 2021.

10/05/2021

A beautiful music video about SMA. Happy Belated Mother's Day to all Mothers. Feel free to check out the page attached to know more about SMA.

「失去，不可怕。可怕的是，我眼睜睜的看著自己失去…」這是脊髓性肌肉萎縮症(Spinal Muscular Atrophy，SMA) 公益宣導主題曲《只要我還在》MV中簡單的一句開場白，卻是所有SMA患者家庭內心深處最無助的恐懼。讓我們一起為SMA病.....

05/02/2021

Jom support! I am running for cause, but it would be more fun if we run together "Virtually" !! https://www.ticket2u.com.my/event/23962/gogohope-virtual-sport-challenge

When Chong Jia Jian (“JJ”) was only 3 years old, he was diagnosed with Muccopolysaccharidosis Type 1 also known as Hurler Syndrome. Hurler Syndrome is a rare...

04/02/2021

25/01/2021

I bet the children miss these delicious cookies!! Thank you Cookie.my for being our great event supporter to belanja our sick children for the past few years.