29/05/2026
It’s World MS Day on Saturday 30 May, a chance to talk about the symptoms of the condition that often remain invisible to the outside world.
MS (Multiple Sclerosis) is a chronic neurological condition in which the immune system mistakenly attacks the brain and spinal cord.
It’s one of the most common neurological diseases affecting young adults, with most people diagnosed between the ages of 20 and 40, just as people are building careers, families, and futures.
The first signs of MS are often physical and can include vision problems, numbness or burning sensations in the hands and feet, balance difficulties, weakness, or trouble walking. These symptoms are usually what bring people into contact with the healthcare system.
But alongside these visible symptoms, there is a quieter set of effects that are less visible and often less responsive to treatment.
Around half of all people living with MS experience cognitive difficulties, including problems with memory, attention, information processing speed, or concentration at some point during the disease course. Fatigue, anxiety, and mood disorders are also common.
In my research I have focussed on these less visible symptoms since 2009. In many ways, that interest was inspired by my own mother, who lived with MS and experienced significant memory difficulties and “slowness”. As her daughter, I often felt powerless in understanding how best to support her. When someone struggles to walk, you know how to help. But cognitive problems were far less obvious, and the impact of them unfold quietly within everyday family life.
One of the most common cognitive changes in MS is slowed information processing speed. Because communication within the brain becomes less efficient, thinking, responding, multitasking, or keeping up with conversations can require far more time and energy than before.
People rarely die from MS but often live with it for many decades. That reality should push us to set the bar higher than disease control alone, and to help people live as fully as possible.
It means recognising and supporting the parts of MS that so often go unseen.
Because cognitive functioning is not just about memory or attention. It shapes personality, relationships, independence, participation, and identity itself. And that is worth protecting.
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Excerpt from an opinion piece originally published on Newsroom by Professor Hanneke Hulst, director of Centre of Brain Research, University of Auckland.
Read in full here: https://newsroom.co.nz/2026/05/29/the-ms-symptoms-that-get-far-less-attention/