UC Davis Huntington's Disease Center of Excellence

07/17/2026

07/09/2026

With the announcement that Roche is ending the GENERATION HD2 and POINT-HD clinical trials may bring up many emotions—disappointment, frustration, sadness, uncertainty, or questions about what this means for the future.

This support group is a space to come together, process the news, share thoughts and feelings, and support one another. While this is a difficult moment for the Huntington's disease community, every clinical trial provides valuable insights that advance research.

We also want to recognize and thank every individual and family who participated in these studies. Their courage and commitment continue to make a difference.

You do not have to navigate this news alone. Join us as we lean on one another, ask questions, and remind ourselves that hope is built not on a single trial, but on the strength and resilience of our community.

Link: https://www.heypeers.com/meetings/58696

06/26/2026

Join HDSA convention on Live Stream!

Join the HDSA livestream this morning for a uniQure Special Presentation!

From 🕤 9:30–10:55 AM

Register to tune in: https://app.webinar.net/lAyJb1mbqY2

05/23/2026

7 DAYS away!

⛳🏌️‍♂️ at the NV for HD Charity Golf Tournament. Friday, May 29, 2026, Gray's Crossing Golf Club, Truckee, CA.

Register TODAY: https://www.tripsee.travel/merchant/book/index.html?ref=2026NVforHDGolfTournament

---------------------------------

Image descriptions: Golf Tournament Flyer

Image Description: NV for HD flyer, image of tall trees, text of: "Help us save future generations from Huntington's Disease" and "all proceeds benefit the amazing team at UC Davis Huntington's Center of Excellence" Friday, May 29, 2026 at Grays Crossing Golf Club, Truckee, CA Registration: 9:30, Sh***un start 10:30, Lunch provided. To REGISTER visit: www.nvforhd.com

Images: Family/friends -- males and females gathered around patio table smiling with golf course and tall trees in background, sun shining. Two friends smiling in close up. 3 friends sitting at patio table, smiling, green foliage in background. Empty golf cart sitting on golf course, tall trees and sun shining.

05/21/2026

05/21/2026

Hd presents itself is so many ways, but let’s not forget the light we still see shining through ☀️ Here are a few responses from our community members that help make their days a little brighter

05/17/2026

13 days and counting...

We want to see you ⛳🏌️‍♂️ at the NV for HD Charity Golf Tournament. Friday, May 29, 2026, Gray's Crossing Golf Club, Truckee, CA.

Register TODAY: https://www.tripsee.travel/merchant/book/index.html?ref=2026NVforHDGolfTournament

---------------------------------

Image descriptions: Golf Tournament Flyer

Image Description: NV for HD flyer, image of tall trees, text of: "Help us save future generations from Huntington's Disease" and "all proceeds benefit the amazing team at UC Davis Huntington's Center of Excellence" Friday, May 29, 2026 at Grays Crossing Golf Club, Truckee, CA Registration: 9:30, Sh***un start 10:30, Lunch provided. To REGISTER visit: www.nvforhd.com

Images: Family/friends -- males and females gathered around patio table smiling with golf course and tall trees in background, sun shining. Two friends smiling in close up. 3 friends sitting at patio table, smiling, green foliage in background. Empty golf cart sitting on golf course, tall trees and sun shining.

05/15/2026

CALLING ALL GOLFERS!!! We want to see you ⛳🏌️‍♂️ at the NV for HD Charity Golf Tournament. Friday, May 29, 2026, Gray's Crossing Golf Club, Truckee, CA.

Register TODAY: https://www.tripsee.travel/merchant/book/index.html?ref=2026NVforHDGolfTournament

---------------------------------

Image descriptions: Golf Tournament Flyer

Image Description: NV for HD flyer, image of tall trees, text of: "Help us save future generations from Huntington's Disease" and "all proceeds benefit the amazing team at UC Davis Huntington's Center of Excellence" Friday, May 29, 2026 at Grays Crossing Golf Club, Truckee, CA Registration: 9:30, Sh***un start 10:30, Lunch provided. To REGISTER visit: www.nvforhd.com

Images: Family/friends -- males and females gathered around patio table smiling with golf course and tall trees in background, sun shining. Two friends smiling in close up. 3 friends sitting at patio table, smiling, green foliage in background. Empty golf cart sitting on golf course, tall trees and sun shining.

05/15/2026

Education for HD professionals!!!!